Sasha's Window

Thursday, November 30, 2006

I Passed!!

Some of you may already know, but on Tuesday I sat for my Clinical Licensing Exam. I have been a licensed social worker for 6 years, but have been needing to take this next level exam for over a year now since my clinical supervision hours have been complete. 2,000 hours of supervision, a little over $600, 4 days of mediocre studying (I must admit), and almost 3 hours of testing and its official. . . I'm a Licensed Clinical Social Worker (LCSW). This doesn't really change anything for me though. I don't get a raise and nobody really cares about these letters, including me. But, if I ever want to do private practice, now I can. And, I suppose it is a little boost to my resume too. I wasn't too nervous for the exam and during it I felt pretty good, but right at the end, right when I pushed "quit" on the computer I felt this pang of anxiety. Moments later my score popped up and I had made it. It felt really good. Better than I thought it would actually. I had already resolved myself to the fact that if I didn't pass, it would be okay and I could simply try again. I had decided that I could give myself a break and chalk up my failure to the lingering effects of chemobrain. Which by the way, I do believe is real. I have been feeling like my brain, particularly my memory has not been up to par the past few months and although I think it may be affected my the psychological stress, I'm pretty sure that poisoning my body has had an effect on my mental function too. Anyway, that said, I didn't even need to use the cancer card in this instance. (Jokes people, jokes) In spite of all the other stuff going on in my head, in my life, in my body. . . I made the grade. Mike, Kirsten, and I celebrated with a yummy Mexican dinner.

I made a slideshow today to post on my myspace page and realized that I can post it here too. . . so here you go. . .


| View Show | Create Your Own

Saturday, November 25, 2006

Just for Jamie :)

I thought about you all day yesterday Jamie. I hope your day was as spectacular as you are! I meant to get this message up yesterday, but the time slipped away. . . and then I realized that this way it just pulls your special day on a bit longer. I love you and think of you all the time. I hope that your 29th year is as good as it can possibly be. Can't wait to celebrate our 30th year together next year! Happy Birthday Jamie!

This is one of my favorite pictures. Jamie was very pregnant with her daughter Isabella in this photo and I think she just epitomizes a beautiful mother. . . don't you?


I had just gotten home from Costa Rica and had the chance for a quick visit with my Cali girls before I went home. I always loved this one of me and you Jamie.

Tuesday, November 21, 2006

Chemo #8 - Last One! Ever!

I am so completely filled with LOVE as I read the responses both in the comments and through personal emails that I have recieved since my last post. Who knew a video would elicit such reaction? Thank you so much for taking the time to write and fill me up with such warmth. And to my uncle Marky. . . I just love you so much and can't wait to see you in December! I love all of you (you know who you are). Romy, Jamie. . . the two of you made me feel like I had arms around me the other day. Thank you so much for that. Oh and Carol, Brad, and all you precious little Whitings; Michelle, Lindy, Christopher, and Anthony, I just absolutely can't stand waiting a minute longer to see you again. Thanks for always keeping up on my blog and sending me such great messages. I love you guys so darn much! December is going to be THE BEST!

There is definitely something different about hearing a voice, seeing a face, and watching the real expressions on someone that is not possible to really grasp through writing. I love to write and it is a tool that I use daily to stay grounded. But, I must admit, my reaction was pretty strong when I watched the video clip I did the other day too. It occurred to me that it would have been kind of interesting to have kept a video journal as well as my written one through these past few months. There is a perspective from a video that you just can't get any other way. But, I didn't and that is okay. I did however decide that on my last day of chemotherapy I would do another video (or 4 actually) to chronicle that day, which I have happily coined my Chemoversary. I feel strongly that I need to find every reason that I can to celebrate and this day, this completion, this survival is certainly deserving of that. I survived Chemo! Hence, Nov. 20th is a new special day for me. It will forever be my Chemoversary. . . may I never have to survive THAT again!!!! I did a few video clips throughout the day so check them out if you'd like.

And, no, this blog is not morphing into a video blog. This is it on the videos for a while. . . Don't worry if they bore you and you don't want to watch them. I won't know and it won't hurt my feelings one bit. They are really more for me than anyone else. In some ways I can't believe I'm sharing them, but, you know, sharing this journey with the most honesty that I can is what feels right to me. So, here it is.

By the way, I feel great. I feel happy and open about my future. And, I feel extreme hope that I can and will keep surviving! Yes!!







Friday, November 17, 2006

The real thing. . .

Thursday, November 16, 2006

Miss Joria

Mike's friends, Noel and Dennis, have a daughter named Joria. I don't know them, but they are close friends with Mike so I've heard stories of their family for several years now. Their daughter, Joria, started growing out her hair about a year ago with the intention of donating it to Locks of Love, but when she heard that Mike ("doc" as she calls him) had a friend who was going to lose her hair, she wanted to give her hair to me instead. Apparently she was pretty insistent that I be the one to get it. What an incredible little girl! First, she comes up with growing her hair out for Locks of Love all on her own, then, she finds someone that is merely friends with her friend "doc" and decides that they should be the one to get her hair. If only the world was filled with more people like Miss Joria! What an example of what it means to be good.



In an email that was forwarded to me, her mom and dad write a little note to a local organization in their town that reads:

Hi,

Our daughter, Joria, recently donated her hair to "Locks of Love". Locks of Love is a non-profit organization that provides hairpieces to financially disadvantaged children under age 18 suffering from long-term medical hair loss.

Joria is 8 years old and a 3rd grader at Memorial School in Upton. She is the oldest of 4 siblings and lives on Mechanic St. She has been growing her hair for over a year with the intention of donating it to a child less fortunate than she. Her hair was cut by Monica at Salon Tashique in Milford.

We are so proud of her, thank you for sharing this info with others through distribution of the Town Crier!

Sincerely,

Noel and Dennis (mom and dad)


Thank You Miss Joria for being such a thoughtful, generous young lady.

Tuesday, November 14, 2006

It will only take 30 seconds

Mastectomy Hospital Bill in Congress

If you know anyone who has had a mastectomy (and you do), you may know that there is a lot of discomfort and pain afterwards. Insurance companies are trying to make mastectomies an outpatient procedure. Let's give women the chance to recover properly in the hospital for 2 days after surgery.

There's a bill called the Breast Cancer Patient Protection Act, which will require insurance companies to cover a minimum 48-hour hospital stay for patients undergoing a mastectomy. It's about eliminating the "drive-through mastectomy" where women are forced to go home just a few hours after surgery, against the wishes of the their doctor, still groggy from anesthesia and sometimes with drainage tubes still attached.

Lifetime Television has put this bill on their web page with a petition drive to show your support. Last year over half the House signed on. Please sign the petiton by clicking on the website below.

http://www.lifetimetv.com/health/breast_mastectomy_pledge.html
When I had a mastectomy in May I spent 3 days in the hospital and still left a little earlier than I probably should have. Luckily, I have great insurance that allowed me to stay and a nurse mama and doctor friend which made transitioning home that much easier too. But, that is not the case for everyone and 2 days is definitely the bare minimum that a woman should be entitled to after a surgery like this. Please check out the link above and sign the petition.

Thank you! (and thanks to Kara for sending me this information)

Monday, November 13, 2006

Wig Shots


Well, I actually liked this wig until I saw these pictures. My reflection in the mirror looks so different than this. How can that be? Maybe the photos just accentuate how incredibly pale I am? Hmm? Anyway, here they are. . . me and my new hair. I can't tell you how much I'm looking forward to just getting back to having a buzz cut. Heck if my eyelashes and eyebrows would just come back I think that would even be pretty thrilling. Soon enough. . .



If you've got some time to spare read the "Camera Saga" below. Its not life-changing or really all that interesting, so please do spare yourself if you are short on time or whatever. But, if you're interested. . . read on. . .

A couple of years ago I purchased a Canon Powershot Elph SD200. It is tiny, takes fantastic pictures, super easy to use, etc, etc. Not a thing in the world was wrong with it, but a couple months ago I decided I wanted to upgrade, specifically to get a waterproof digital camera. I do so much outdoors and around water that I thought it would be nice to have a camera that could go more places with me. So, I put my little canon for sale on craigslist.com. It sold quickly and painlessly for $250, which included the case, extra memory cards and batteries, etc. The buyer said he would pay through alertpay.com and I recieved a confirmation email that the payment had been made in my name. I also recieved a pre-paid fedex label. So, I sent the camera off in anticipation that I would recieve the payment within a few days, as the email had stated. As soon as the camera was sent I recieved no further communication with alertpay or the buyer. Finally I got in touch with alertpay to inquire about the situation and they informed me that the email address from which I had recieved correspondence from them was not their address. A few emails to the buyer (that were never responded to) later I gave up. I had been had. It really did bother me for a while, but finally I let it go and just thought, one, thank goodness its just money, and two, he must have needed it a lot more than me. Sure seems like a lot of trouble for a scam though.

Meanwhile I ordered my new and improved camera, the shockproof/waterproof Olympus SW800. It arrived quickly, looked nice, had cool features and even took pictures while sitting in a glass of water. Only one tiny little problem. . . the picture quality sucked!!! Truly. So, back to the store it went, minus a 15% restocking fee and shipping charges to and from, which added up to about $70. Ouch.

So, I decided to just go back to the tried and true Canon, even though it wasn't waterproof. So, after browsing through the newer Powershot Elph models and reading reviews, I decided on the SD600. I did price checking online and ordered the best deal I could find, which happened to be through prestigecamera.com. Next, I got an email that says verbal confirmation was required on my order. When I called to confirm and declined the additional items they tried to sell me (memory cards, batteries, etc.) they became rude with me and reluctantly completed my order. Only, they didn't. 2 days later I recieved an email stating that the camera was no longer in stock. So, I tried again and ordered the next best deal I could find, which was through digitalfotoclub.com. Again I had to call to verbally confirm my order, only this time I understood that it was all about up-selling me. I politely declined everything offered to a fairly indignant customer service agent. He pressed me to tell him why I didn't want anything else and when I told him that I had purchased the items from another retailer he simply told me that my order would be cancelled. I told him I didn't want my order cancelled, just that I didn't want the extra items. He then said, "well, I don't want to sell you the camera anymore. . . why don't you buy the camera from the same place you got the memory card. . ." and then hung up on me. I called back and he refused to let me talk to anyone else, told me that he didn't have to sell me the camera and then hung up on me again. I couldn't believe it. So, finally, one last time, I ordered it again. This time it was from broadwayphoto.com. I had a very similar experience as the previous two, but this time they didn't cancel my order and the camera did come. You may think this story is finally over, but oh no, not yet. The camera arrived, only it wasn't what I ordered. It was the Japanese "equivalent" (but not necessarily equal to, as canon told me when I called them directly to inquire). What?! Seriously?! What a scam. It looked very similar, and maybe it was just fine, but the screen was incredibly grainy and there was no warranty at all. So, back to the store it went too. This time, only a 5% restocking fee plus shipping to and from, which equalled about $30.

By this time I am out a perfectly great camera, $100, and have had to deal with 3 rude customer service guys, and two months hassling over finding a new camera. What a ridiculously unneccessary fiasco. So, on my last and final attempt at buying this camera I went through amazon.com. Yes, it was a little more than some of the other places I found, but it was completely and utterly hassle free and my camera arrived in 4 short days. If only I had just gone through them in the first place I would have saved about $80. I guess my point to this story is just to warn you to be smarter than I was. Don't send off any items from an online sale without the money in your hand first. And, don't bother with those online discount companies. Just go through a known retailer, spend a couple extra dollars, and skip the headache.

One final thought. Canon cameras rock! I've had this new camera less than a day and I love it already. The size is perfect to take it anywhere and it really takes almost flawless pictures every single time.

Enough for now. . .

Sunday, November 12, 2006

For Nicole. . .


Happy Happy Birthday to a wonderful, amazing woman and an incredible friend, Nicole. I miss you so much and can't wait to see you and your new baby boy. (Just one more month) I hope you celebrated you and had a spectacular birthday! I'm thinking of you always.

I love you! ~Sasha

Friday, November 10, 2006

A little taste. . .



I can't take credit for this photo, but it was taken here in Nome a couple of years ago by a friend of mine. This gives you a little idea of what the show was like last night. Its stuff like this that makes living in the frigid north so darn cool!

AMAZING! (and some news)

I was at my friend Buford's house tonight watching a movie and left at about 12:30. As I reversed out of his driveway and the space that was the house turned to sky, I caught a glance of the most incredible display of northern lights that I have ever seen. I immediately jumped out of my car and ran into the middle of the road to have a clear view of the sky. It was entirely filled with dancing, swirling, colorful waves of light. It was moving so fast and even each blink would bring a completely new scene. I couldn't believe what I was seeing. I ran back in the house and yelled for Buford to come outside and see it. He was pretty tired and already fairly settled into the couch, lights off, eyes closed. . . but, he came out anyway. We jumped in the car and drove two blocks to get out of the city lights. We drove to a couple of different spots chasing the lights and ultimately found a perfect place to watch. We must have spent at least a half an hour watching this spectacular light show by Miss Nature. It made my year. I know that sounds like a stretch, but seriously, I was in awe. I have seen Northern Lights through the past four years, but have never seen anything that even remotely compares to what I witnessed tonight. Buford has lived in Alaska his entire life and he too said that he had never seen anything like it. Needless to say, he was glad I grabbed him off the couch to check it out. It was kind of like being on drugs only so much better!! Wow! I wish I had had my camera so that I could have captured some of it to share with you. I guess my written description will have to suffice.

Since I'm a bit wired from this crazy, beautiful light show that I just saw, I thought I'd write a little. I've been meaning to write since I got home last Saturday actually. I wanted to share the news I mentioned earlier. The news isn't really worthy of being called news, but here it is anyway. . . I got a wig, and I got a boob. . .

From the start I never had any intention of getting a wig. It just seemed so foreign to me and honestly, I've been okay with my bald head. Sure its not my favorite look, but for 5 months now it has felt alright. The boob (actually called a prosthetic) was something I did consider early on. However, when I was considering it, I was still swollen from surgery and couldn't be fit properly, so I waited. By the time I was ready physically, I just didn't want it anymore. That too has been okay. Looking back I can now see that neither of those things played much importance for me while I had so many other gigantic things to process through. I was also so incredibly run down physically from the chemo that I didn't even have the energy to think about it. Since these past couple of chemo rounds have been so much easier on me, I have begun to really feel better physically and emotionally. I am still processing through a lot, but I guess the giant nature of it all has lessened a little.

Along with feeling better, I am feeling tired of being the center of attention. I'm tired of feeling like I'm wearing a big sign that tells the world exactly what is happening in my life. I'm tired of feeling like I'm a walking invitation for anyone to stare at me, ask me questions, or give me advice. I'm just sort of over it. Its strange though because what I've realized recently is that maybe part of me being okay with my physical changes being right out there for the world to see was because I needed people to see. I have felt so alone in so many ways and maybe by being out there so openly I was in some strange way filling my need to connect with others. I needed others to know so that I didn't have to feel so alone. I didn't realize that until now.

But, at this point, I'm ready to move forward. I'm ready to blend in and feel like myself again. The moment it really hit me was a couple of weeks ago at the airport in Anchorage. As I was checking my bags, the agent looked over my ID. With a shocked look he stared harder at it and then at me and back again. With a sort of desperate quality to his voice, he says, "Oh my gosh. . . you were soooo pretty. . ." Turning to the agent beside him, he hands her my ID and says "Look at this. . . can you believe how pretty she was?" She was clearly a bit more aware than he was and didn't give much reaction besides an apologetic glance at me. I didn't take offense, as I know that he had no ill intention, but did wish at the moment that I didn't have to be going through what I'm going through.

As I walked away, slinging my backpack on, I had this little vision of how I used to have to pull my hair out of the way everytime I had that pack on. I just thought to myself how tired I was of my big, bald head, among other things. So, before my next trip into Anchorage I made appointments with a hair prothetist and with a fit specialist at the lingerie department in Nordstrom's. Two days after my last chemo, I was in a new do and feeling like my shirt actually fit right for the first time in months. Tomorrow will be one week with my new "accessories", as I like to call them, and I have to admit, it feels so much better than I ever expected.

The wig is shoulder length, auburn, and made of real hair. I think its really pretty and its actually the color that I've always wished my hair was. Since I got to choose, I figured why not get exactly what I want. The prosthetic is made of silicone, is perfectly comfortable, and looks really natural. This past week I have really felt pretty good. Its not just the "accessories", but also the fact that I feel so much better physically, and I am only one chemo treatment away from closing this chapter in my life. What I notice about restoring my physical self a little bit though, is that I feel so much less shocked when I catch a reflection of myself. I don't have an immediate blaring reminder of cancer, even if its just for a second. I feel a little more feminine as I spend time doing my hair in the morning. I even take the time to put on a little make-up, including eyebrows. A make-up girl at Nordstrom taught me how and with the few tiny hairs I have left, the powder I use ends up looking pretty darn close to the real thing. It looks like my face again. I feel like I'm even standing up straighter. I didn't expect any of that. I was just ready to be a little more anonymous that's all. So, surprise to even me. The wig and the prosthetic. . . fantastic! I think one of the things that feels so good is that I know that I don't need these things. I know that I am okay without them. But, I like them and I feel good. I feel better than I've felt in what seems like ages!

These accessories are not cheap. The wig was almost $800 and the prosthetic was close to $400. Fortunately, I have spectacular insurance that covers the full cost of both. There isn't a second since this whole thing started that I haven't thanked my lucky stars for my amazing insurance. So, since I'm so lucky, I figure I can pass it along. Many women can't afford these things and do not have insurance to cover it, so I'm looking forward to the day when I no longer need them. I'm excited about finding another woman who can get some use of these accessories who otherwise wouldn't be able to. Win, Win.

Well, it is way past my bedtime and that wired feeling I had has long since faded, so finally, goodnight. I will post some pictures of my pretty new hair very soon.

Friday, November 03, 2006

Chemo #7

Another gift. . . a smooth, easy breezy, super fantastic, walk in the park chemo round. I feel so lucky. I'm tired, but not so tired that I think anyone else could even notice. But, other than that, I am fantastic. No sickness, no pain. WooHoo!! I'm so glad that the days of that first, awful kind of chemo is in the past. And, even this easy stuff is nearing its end too. ONE MORE ROUND TO GO!!

My last round has been moved up a couple of days because of the holidays so I will be getting it on Monday, November 20th, just before Thanksgiving. And that, my friends, will be it. I can close this chapter. Biggest sigh of my life!!

I'm still in Anchorage, but will be going home tomorrow. I have some more news to write about, but I'll wait until I get home. . .

Winter is in full swing here in Anchorage. Nome doesn't have a drop of snow, but Anchorage has at least 6-8 inches. The roads are icy and the barren trees are barren no longer. They are all stacked with beautiful, crystal white snow. This must be my favorite scene in winter. . . the outstretched arms of trees covered in nature's white powder. Its absolutely breathtaking to me. Mike is finally settling into his new house so I was able to stay there this time. Its a gorgeous, cozy place with an incredible view of the city, trees, and inlet. I love it. There is something very peaceful about it here for me. I can only imagine that as Mike continues to settle in it will just keep getting better. I'm so happy for him and so grateful that I have a home away from home. Thank you always Mike!

Peace, Sasha

(Did I mention that I have just ONE MORE ROUND OF CHEMO?)